Paediatric Cystic Fibrosis Service
Cystic Fibrosis is a lifelong genetic condition which effects the respiratory and gastroenterology systems, among others. It is usually diagnosed at birth via the newborn “heel prick” screening.
The Paediatric Cystic Fibrosis team are based at Gloucestershire Royal Hospital, where we focus on a multidisciplinary approach for the best possible outcomes for our children and young people.
We share care with Bristol Childrens Hospital who are our local centre for care. Dr Tom Hilliard, respiratory consultant, and his team visit throughout the year and see all families at least twice a year.
Gloucestershire Royal Hospital team
- Dr Laura Hole- Consultant Paediatrician (with an interest in Respiratory)
- Dr Wasim Qayum – Consultant Paediatrician (with an interest in Respiratory)
- Helen Kennard- Paediatric Respiratory Nurse Specialist
- Michelle Herman- Paediatric Respiratory Nurse Specialist
- Alan Dyke- Senior Paediatric Respiratory Nurse Specialist
- Sam Darwin- Paediatric Physiotherapist
- Jess Simpson- Paediatric Dietician
- Mira Vujasin- Paediatric Pharmacist
How could or a child or young person be referred to the speciality team?
Cystic Fibrosis is usually diagnosed at birth via the new born “heel prick” screening.
How are young people transitioned to adult services within your service?
We follow the Ready Steady Go programme and from the age of 12 ensure the young person is prepared emotionally and educated for adult services.
Adult services for Cystic Fibrosis are offered by Bristol Royal infirmary . The adult Cystic Fibrosis team will visit you in Outpatient appointments a few times before transition and we accompany you to appointments in Bristol to make the transition as smooth as possible